A Picture Of The Quality Of Life Of Children With Epilepsy In Medan With Qolce-55

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Introduction

Epilepsy is a neurological disorder that affects the brain, causing repeated seizures that occur without provocation for more than 24 hours. According to the World Health Organization (WHO), around 50 million people worldwide experience epilepsy. However, in Indonesia, there is no valid data regarding the number of epilepsy patients. The quality of life of children with epilepsy is a significant concern, as it encompasses various aspects such as cognitive, social, physical, and emotional functions. One of the measuring devices that can be used to assess the quality of life of children with epilepsy is Qolce-55, which consists of 55 questions that cover five domains: cognitive functions, physical functions, behavior functions, and emotional functions.

The Importance of Understanding the Quality of Life of Children with Epilepsy

Understanding the quality of life of children with epilepsy is crucial in providing appropriate support and care. The quality of life of children with epilepsy is affected by various factors, including the frequency and severity of seizures, the impact of seizures on daily activities, and the level of support from family and friends. By assessing the quality of life of children with epilepsy, healthcare professionals can identify areas that need attention and provide targeted interventions to improve their quality of life.

Methodology

This study aims to determine the quality of life of children with epilepsy in the field and understand how these conditions affect them. The data in this study were collected using the Qolce-55 questionnaire given to parents or caregivers of children with epilepsy. The data collected is then analyzed using univariate analysis with a descriptive approach to provide an overview of the results.

Research Result

In this study, as many as 57 respondents participated. The results show that 68.4% of children have good quality of life. Further analysis based on function shows that the cognitive, emotional, and social function of the child is in a good category, while for physical functions, more children are experiencing disorders than those that function well.

Additional Analysis and Explanation

The results of this study indicate that although many children with epilepsy in the field have good quality of life, the biggest challenge lies in their physical function. This can be caused by physical limitations experienced by these children due to seizures that occur repeatedly. Disrupted physical health certainly affects their daily activities, as well as their social interaction, which in turn can affect emotional and cognitive aspects.

Assessment of Quality of Life using Qolce-55

Assessment of quality of life using Qolce-55 helps identify which areas need to get more attention in the care and intervention for children of epilepsy. It is essential for parents and caregivers to understand this condition so that they can provide appropriate support. In addition, the results of this study also showed the need for socialization and education to the public to reduce stigma of children with epilepsy, as well as encouraging support from their social environment.

Conclusion

With a better understanding of how epilepsy affects children, more effective prevention and maintenance steps can be implemented. This will not only improve the quality of life of children with epilepsy, but also provide broader support from the community. Through further research, we can get more comprehensive data about epilepsy in Indonesia, and ensure that every child gets the treatment they need.

Recommendations

Based on the results of this study, the following recommendations are made:

  • Parents and caregivers should be educated about the condition of epilepsy and its impact on the quality of life of children.
  • Socialization and education programs should be implemented to reduce stigma of children with epilepsy and encourage support from their social environment.
  • Healthcare professionals should assess the quality of life of children with epilepsy using Qolce-55 to identify areas that need attention and provide targeted interventions.
  • Further research should be conducted to gather more comprehensive data about epilepsy in Indonesia and to develop effective prevention and maintenance strategies.

Limitations of the Study

This study has several limitations, including:

  • The sample size was relatively small, which may limit the generalizability of the results.
  • The study only assessed the quality of life of children with epilepsy in Medan, which may not be representative of children with epilepsy in other regions of Indonesia.
  • The study did not control for other factors that may affect the quality of life of children with epilepsy, such as socioeconomic status and access to healthcare.

Future Directions

Future studies should aim to:

  • Increase the sample size to improve the generalizability of the results.
  • Assess the quality of life of children with epilepsy in other regions of Indonesia to gather more comprehensive data.
  • Control for other factors that may affect the quality of life of children with epilepsy, such as socioeconomic status and access to healthcare.
  • Develop and implement effective prevention and maintenance strategies to improve the quality of life of children with epilepsy.
    Q&A: Understanding the Quality of Life of Children with Epilepsy in Medan with Qolce-55 =====================================================================================

Frequently Asked Questions

Q: What is epilepsy and how does it affect children?

A: Epilepsy is a neurological disorder that affects the brain, causing repeated seizures that occur without provocation for more than 24 hours. In children, epilepsy can affect their cognitive, social, physical, and emotional functions, making it challenging for them to participate in daily activities and interact with their peers.

Q: What is Qolce-55 and how is it used to assess the quality of life of children with epilepsy?

A: Qolce-55 is a measuring device that consists of 55 questions that cover five domains: cognitive functions, physical functions, behavior functions, and emotional functions. It is used to assess the quality of life of children with epilepsy by evaluating their level of functioning in each domain.

Q: What are the benefits of using Qolce-55 to assess the quality of life of children with epilepsy?

A: The benefits of using Qolce-55 include:

  • Identifying areas that need attention and providing targeted interventions to improve the quality of life of children with epilepsy.
  • Reducing stigma and promoting socialization and education to the public.
  • Encouraging support from the social environment.
  • Improving the quality of life of children with epilepsy.

Q: What are the limitations of the study?

A: The limitations of the study include:

  • The sample size was relatively small, which may limit the generalizability of the results.
  • The study only assessed the quality of life of children with epilepsy in Medan, which may not be representative of children with epilepsy in other regions of Indonesia.
  • The study did not control for other factors that may affect the quality of life of children with epilepsy, such as socioeconomic status and access to healthcare.

Q: What are the recommendations for parents and caregivers of children with epilepsy?

A: The recommendations for parents and caregivers of children with epilepsy include:

  • Educating themselves about the condition of epilepsy and its impact on the quality of life of children.
  • Providing support and care to their children.
  • Encouraging socialization and education to the public to reduce stigma and promote support from the social environment.

Q: What are the recommendations for healthcare professionals?

A: The recommendations for healthcare professionals include:

  • Assessing the quality of life of children with epilepsy using Qolce-55 to identify areas that need attention and provide targeted interventions.
  • Providing education and support to parents and caregivers of children with epilepsy.
  • Encouraging socialization and education to the public to reduce stigma and promote support from the social environment.

Q: What are the future directions for research?

A: The future directions for research include:

  • Increasing the sample size to improve the generalizability of the results.
  • Assessing the quality of life of children with epilepsy in other regions of Indonesia to gather more comprehensive data.
  • Controlling for other factors that may affect the quality of life of children with epilepsy, such as socioeconomic status and access to healthcare.
  • Developing and implementing effective prevention and maintenance strategies to improve the quality of life of children with epilepsy.

Conclusion

Understanding the quality of life of children with epilepsy is crucial in providing appropriate support and care. By using Qolce-55 to assess the quality of life of children with epilepsy, healthcare professionals can identify areas that need attention and provide targeted interventions to improve their quality of life. Further research is needed to gather more comprehensive data about epilepsy in Indonesia and to develop effective prevention and maintenance strategies.